Median Arcuate Ligament Syndrome is a condition that affects anywhere from 7.5 million to 18 million people worldwide. However, most medical professionals have never heard of this diagnosis, so patients often suffer for years before finding the source of their pain. We aim to change that.
"When you hear hoofbeats, think of horses not zebras".
MALS Support Community seeks to inform patients and medical professionals about this condition in an effort to decrease the time to diagnosis. We hope that, by raising awareness, we will be able to reduce the number of patients who are misdiagnosed with chronic abdominal pain or eating disorders. We believe every patient deserves a chance at a healthier life, and we hope to provide answers for those who are searching.
WHO WE ARE
We are MALS patients, care takers, mothers, fathers, sisters and brothers who struggled to find resources and answers to the MALS mysteries. Through our journey we have decided to provide a safe place to share information in the hopes of helping others find the correct diagnosis faster.
We are strictly an online community and can be reached through the forum or by emailing us at firstname.lastname@example.org
MALS, which stands for Median Arcuate Ligament Syndrome, is a congenital anatomical anomaly. It is caused by the median arcuate ligament compressing the celiac artery and the celiac ganglion, which can cause a change in blood flow and/or epigastric pain. It is found in 15%-34% of the US population, but only one percent of that
This figure is a great illustration of the difference between the median arcuate ligament in a person without compression and a person with MALS. In the second image, the diaphragm is lower than in the first, causing the median arcuate ligament to compress the celiac artery. This compression, and the inflammation of the surrounding nerves,
Recently published in the Pediatric ANNALS Vol.45No.7,2016 is a remarkably well written study and journal which reviews CAP (Chronic Abdominal Pain) vs. MALS (Median Arcuate Ligament Syndrome) in a group of 30 MALS Patients. The findings are a brief overview and some pretty interesting psychosocial data is shared in the charts within. This journal was put
In this video you a very smart medical student outlines the all of the connections of the arcuate ligament and its relationship to the body with diagrams. She goes into such great detail she even found a mistake in her medical book. All of her sources are provided. We hope you enjoy the video.
Below is a interactive presentation delivered in September of 2013 by McGill University Health Center. The presentation includes several charts with data explaining MALS. The last slide gives reference data for the presentation.
Median Arcuate Ligament Syndrome falls under the umbrella of Rare Diseases–but it has been in that category for less than a year. Before that, it was simply overlooked. February 28 is Rare Disease Day. All of us who have been affected by conditions that doctors don’t know much about recognize the need for research and
Most patients with chronic, undiagnosed abdominal pain have had many gastrointestinal tests performed, including EGDs, gastric emptying studies, colonoscopies, Bravo esophageal pH tests, CT scans, and ultrasounds. While these tests may not give patients the answers they’re looking for, they might still hold the answer that doctors aren’t looking for: MALS. The two most common
“When you open up about your condition, you don’t just receive information,” Dr. Wicks said, “you also start sharing your own information with others. You get to be the helper sometimes, and helping people makes you feel really good.”` Ultimately, what I had thought of as a black-and-white decision — tell or don’t tell —
For those of your contemplating or have had vascular work done. Please read FDA concern over experimental procedures that use balloon angioplasty devices to treat autonomic dysfunction: FDA safety communication Date issued: March 8, 2017 Audiences: Health care providers who manage the care of patients with autonomic dysfunction, including neurologists, interventionalists (radiologists, vascular surgeons, and
This article, from the Journal of Vascular Surgery, discusses the different approaches to and outcomes of MALS surgeries. (It’s a bit on the long side, but it is an excellent source of information.) http://www.jvascsurg.org/article/S0741-5214(12)01044-0/pdf
MALS is treated with surgical intervention. There are three primary surgical techniques: robotic-assisted, laparoscopic, and open. However, because MALS is a young diagnosis without much research, surgical procedures vary between surgeons. A robotic-assisted surgery is a laparoscopic procedure that gives surgeons more control, precision, and flexibility. Unfortunately, there is little literature on MALS-specific procedures, but
We work hard to keep you up to date and well informed on everything MALS related