Welcome to the MALS (Median Arcuate Ligament Syndrome) community forum.

This is a MALS (Median Arcuate Ligament Syndrome) web forum which is member based, meaning only members can read the posts, which is built for everyone who is looking for information or interaction regarding MALS, diagnosis, treatments, doctors information, insurance, etc. IT’s COMPLETELY FREE! If you see a category you feel would be helpful please email us and we will be more than happy to add it. Please also take a moment to become familiar with the Community Constitution prior to using the site. If you would like to participate in the development of this community please reach out to us! We are currently looking for people interested in moderating MALS Support assets and bringing MALS awareness and info to the world! Thank you and we hope you enjoy the community.

MALS Community Forum

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Introductions

Please take a moment and introduce yourself to the community!

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FAQ's (Frequently Asked Questions)

Here you will find answers to the most frequently asked questions from how to post a topic or reply to a thread, to changing your password. In time, we will be populating this with the questions asked most often.

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Debates

Looking to debate a procedure or condition? This is the place. In an effort to keep the forums safe and without conflict, we have created this place for all debates.

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Social

Just looking to socialize. This is the forum for that!

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News and Politics

Looking to discuss current events such as politics and the latest news? This is the place!

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Art

Everything from poems, drawings, music and more. If you are creating art, this is the place to post it!

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MALS Symptoms
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MALS Symptoms

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MALS Diagnostics
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Arteriogram

An arteriogram is an X-ray of the blood vessels called arteries. It is performed to evaluate various vascular conditions, such as an aneurysm (a bulging, weakened area in the wall of a blood vessel), stenosis (narrowing of a blood vessel), or blockages. Other names for this procedure are angiogram and arteriography.

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Celiac Plexus Nerve Block

Celiac plexus block is a nerve block for severe, often cancer-related pain, the most commonly performed neurolytic nerve block, used early in managing pain due to pancreatic and other upper abdominal malignancies Adverse effects Diarrhea, orthostatic hypotension, pneumo-thorax, neurologic sequelae–eg, L-1 root neuralgia or paraplegia.

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CTA - Computed Tomography Angiography

Computed tomography angiography (also called CT angiography or CTA) is a computed tomography technique used to visualize arterial and venous vessels throughout the body. This ranges from arteries serving the brain to those bringing blood to the lungs, kidneys, arms and legs.

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Duplex Ultrasound

A duplex ultrasound combines: Traditional ultrasound: This uses sound waves that bounce off blood vessels to create pictures. Doppler ultrasound: This records sound waves reflecting off moving objects, such as blood, to measure their speed and other aspects of how they flow

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MRA - Magnetic Resonance Angiogram

A magnetic resonance angiogram (MRA) is a type of magnetic resonance imaging (MRI) scan that uses a magnetic field and pulses of radio wave energy to provide pictures of blood vessels inside the body.

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MALS Treatments
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Laparoscopic take down of the median arcuate ligament and division of celiac ganglion

Minimally invasive (laparoscopic) surgery may be an option. This technique involves 5 small (approximately 1/2 inch) incisions. The surgeon uses these incisions to insert the instruments to separate the median arcuate ligament, divide the nerves (neurolysis) and remove the pressure of the ligament on the celiac artery.

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Open release of median arcuate ligament and dissection of celiac ganglion

Traditional treatment for patients with MALS is open surgery to release the ligment and stop it from pressing on the celiac artery. The celiac nerves are broken up using a technique called neurolysis. This surgery involves one large incision down the middle of the abdominal area.

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MALS Pain Managment
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Medications

This forum is set up to discuss medications

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Non-Pharmaceutical

For all solutions not related to the pharmaceutical industry.

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MALS Medical Studies and Reports
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Medical Reports from Medical Community

Medically accredited reports with reporting source(s)

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Reports from MALS Community

Reports and documents created by MALS community members

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Educational Videos and Lectures

Educational and Lecture video links

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MALS Known Doctors and Surgeons
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General Doctors and Surgeon Discussions

Looking to share information on doctors? This is the place!

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MALS "other" Common Conditions and Ailments
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EDS - Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome, often referred to as “EDS” is a collection of heritable connective tissue disorders. Either directly or indirectly, Ehlers-Danlos Syndrome is known or thought to alter the biology of collagen in the body (the most abundant protein), which can lead to multi-systemic symptoms. Each type has certain physical traits and with notable exception to the most common form, the hypermobile type of Ehlers-Danlos Syndrome, most types have a known disease-causing gene.

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Mental Health

According to the World Health Organization (WHO), mental health includes "subjective well-being, perceived self-efficacy, autonomy, competence, inter-generational dependence, and self-actualization of one's intellectual and emotional potential, among others.

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MSA - Dysautonomia - Multiple System Atrophy

MSA is a fatal form of dysautonomia that occurs in adult ages 40 and up. It is a neurodegenertive disorder with some similarities to Parkinson's disease, but unlike Parkinson's patients, MSA patients usually become fully bedridden within a 2 years of diagnosis and die within 5-10 years. MSA is considered a rare disease, with an estimated 350,000 patients worldwide.

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NCS - Dysautonomia - Neurocardiogenic Syncope

NCS is the most common form of dysautonomia, NCS impacts tens of millions of individuals worldwide. Many individuals with NCS have a mild case, with fainting spells once or twice in their lifetime. However, some individuals have severe NCS which results in fainting several times per day, which can lead to falls, broken bones and sometimes traumatic brain injury. Individuals with moderate to severe NCS have difficulty engaging in work, school and social activities due to the frequent fainting attacks.

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POTS - Dysautonomia - Postural Orthostatic Tachycardia Syndrome

Postural orthostatic tachycardia syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.

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RLS - Restless Leg Syndrome

Restless legs syndrome typically occurs while sitting or lying down. It generally worsens with age and can disrupt sleep. The main symptom is a nearly irresistible urge to move the legs.

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MALS Care Takers and Support Systems
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Care Takers and Supporters

As a family caregiver for an ailing parent, child, spouse, or other loved one, you’re likely to face a host of new responsibilities, many of which are unfamiliar or intimidating. At times, you may feel overwhelmed and alone. But despite its challenges, caregiving can also be rewarding. Find tips and support here!

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Employment, FMLA, Disability and Social Assistance Programs

Do you have questions about employment rights, disability and how to get sign up for financial assistance?

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Insurance Approvals, Denials and Appeals

This is the place to go if your looking to discuss insurance approvals, denials and appeals.

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Travel

Discuss everything travel related here

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